EPIC: European Blood Pressure Intensive Control after Stroke

Privacy and Data Protection

At the heart of EPIC, is a commitment to the privacy and security of all participants who generously contribute their data. We understand the trust placed in us when sharing personal health-related information, and we take this responsibility seriously.

Our project involves collecting data you have inputted from your home-blood pressure monitor. This includes your blood pressure readings and heart rates. All participants voluntarily consent to share this data. To ensure privacy, all data is anonymized by removing personal identifying information before analysis.

This study is designed and based in UCD. UCD acts as a data controller, always prioritizing data protection and ethical research practices.

For detailed insights into the data types collected, including demographic information, and various health metrics, please refer to our Data Protection Impact Assessment (DPIA) using the link below. The DPIA outlines our approach to collecting, processing, storing, and protecting your data. It also details our commitment to data minimisation and the legal basis for processing personal data under GDPR Article 6.

Your rights regarding your data, including access, rectification, and erasure, are paramount. We've implemented robust technical security measures to safeguard your data, such as pseudonymisation, encryption in transit and at rest, and strict access controls. Our mobile app, central to data collection, adheres to the highest security standards, ensuring the safe transmission and storage of your data on secure, GDPR-compliant cloud servers within the EEA.

For more detailed information on how we collect, use, and protect your data, and to understand your rights as a participant, please click the button below to access our full DPIA document.